The story itself is old news, sort of. You all know by now that Dr. James Watson, co-discoverer of the structure of DNA along with Dr. Francis Crick — a discovery for which they won a Nobel Prize — apparently made comments which were widely seen as racially antagonistic:
he 79-year-old geneticist said he was “inherently gloomy about the prospect of Africa†because “all our social policies are based on the fact that their intelligence is the same as ours - whereas all the testing says not really.”. He said he hoped that everyone was equal, but countered that “people who have to deal with black employees find this not trueâ€.
He says that you should not discriminate on the basis of colour, because “there are many people of colour who are very talented, but don’t promote them when they haven’t succeeded at the lower levelâ€. He writes that “there is no firm reason to anticipate that the intellectual capacities of peoples geographically separated in their evolution should prove to have evolved identically. Our wanting to reserve equal powers of reason as some universal heritage of humanity will not be enough to make it soâ€.
Dr. Watson made the comments in an interview with the Times of London which appeared in the Sunday 14 October edition. As you’ll see, this is not the first time he has made controversial comments. This time, however, he had the added disadvantage of not having presented a single shred of science to back up his comments. An official at the research lab which he was the chancellor of disavowed those comments and said that there was no research going on at the lab related to such topics. That’s not 100% true, as it turns out, but it no longer matters — the die is cast. I’m not arguing that Watson doesn’t deserve scorn or doesn’t deserve to be challenged. That is all old news. This post is only peripherally about race — it’s actually about the ethics of storing and sharing genetic data.
I was pointed to the Web site of John Hawks by an old pal of this site to look for information on Hawks’s article on the last five thousand years of human evolution. Instead, I found the post that motivated this one.
An Icelandic corporation called deCODE analyzed Watson’s genome, which he had published on the Internet for all to download, and found the following, according to the New York Times:
A new analysis of Dr. Watson’s genome shows that he has 16 times the number of genes considered to be of African origin than the average white European does — about the same amount of African DNA that would show up if one great-grandparent were African, said Kari Stefansson, the chief executive of deCODE Genetics of Iceland, which did the analysis.
“This came up as a bit of a surprise,†Dr. Stefansson said in an interview, “especially as a sequel to his utterly inappropriate comments about Africans.â€
After the news of Dr. Watson’s genetic ancestry was published in The Times of London on Sunday, much of the British media played the news for a lark, with headlines like “Revealed: Scientist Who Sparked Racism Row Has Black Genes†and “DNA Pioneer James Watson Is Blacker Than He Thought.â€
But the news, straddling the uncertain boundary of genetic science and society, is more than a Southern gothic drama of racial identity played out on the world stage.
“The irony is bigger, and broader, than his having made derogatory comments and having an ancestral relationship with the folks he insulted,†said Kathy Hudson, the founder and director of the Genetics and Public Policy Center in Washington. As people see what happens to Dr. Watson and others as they undergo what she called the “molecular Full Monty,†the inevitable surprises might “help people make the decision about whether they want their information for themselves, and to ask, Who will I share this with?â€
It turns out, however, that the methods used and claims made by this company might not be so hot. John Hawks writes,
I find it strange that the leader of one of the major genetics firms in the world is cheerily showing one of the worst possible abuses of personal genomics, in the most high-profile way possible! I find it just flabbergasting… [snip]
[T]he entire reason why many people think public genomics is a bad idea revolves around privacy and informed consent. People want to believe that their genes won’t be used against them — that information about risk alleles won’t be used to deny employment or insurance, for example. Information about one’s ancestry clearly falls in that category: most people want to keep such information private.
Informed consent is a problem in public genomics because your genes are not only yours — they are also the genes of your parents, children, and other relatives. When you make your gene sequence public, you are taking with it information about your kin, who may not want such information out there. At present, they have no way of stopping you — they have to live with your decisions.
No kidding. Is there anyone out there reading this who doesn’t believe that we’re about ten years away from seeing this in American political campaigns? I’m picturing a debate in 12 years where all the candidates are electrolyzed free of hair and are wearing full-body hazmat suits to prevent any “genetic material” from floating down to opposition researchers with sample bags.
This whole area of science leaves me hopeful that humanity can solve a great many heretofore intractable problems. But with technological change always comes societal and economic change, and there are a great many social and economic power groups that would love to have this information, exploiting it for their own benefits. Let the genetic material-holder beware.
In addition, I agree with Hawks — these sorts of stories “move product” and draw attention, but do not help the cause of science at all. Scientists like the Icelandic folks above would do well not to participate in them.
[inherited from: Stephen aka "The Commissar", Pharyngula]
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